Field of work

Management and further development of the Swiss Registry for Neuromuscular Disorders (Swiss-Reg-NMD) and coordination of registry-related research projects.

  • Organisation and administration of Swiss-Reg-NMD
    • Project logistics, including staff training, patient recruitment, clinic-based data collection, and data quality assurance
    • Guidelines, fundraising, budgeting, project accounting, and ethics applications
  • Stakeholder communication and collaboration
    • Coordination of research agreements with clinical, academic, and industry partners
    • Development of registry datasets in collaboration with clinicians
    • Processing of national and international data requests
    • Preparation of reports, presentations, and responses to researchers, funders, health authorities, and patients
  • Maintenance and expansion of the REDCap registry database
  • Public outreach and dissemination
    • Annual reports, website content, and conference representation
  • Line management responsibility for the Data Manager

Curriculum Vitae

Since 09/2019
Project Manager Swiss-Reg-NMD and Research Associate, Institute of Social and Preventive Medicine, University of Bern

11/2002–09/2003
Postdoctoral Researcher, Institute of Animal Pathology, Molecular Dermatology Unit, University of Bern

10/1998–11/2002
PhD in Molecular Biology, Institute of Animal Pathology, Molecular Dermatology Unit, University of Bern

1993–1998
BSc and MSc in Biology, specialization in Microbiology, University of Bern