I am employed by the Children’s Hospital Zurich and hold a dual function as a project coordinator at the Children’s Hospital and the Swiss Rare Disease Registry (SRDR) at the Institute of Social and Preventive Medicine (ISPM), University of Bern. My work focuses on strengthening collaboration between the national SRDR registry and clinical partners. I coordinate communication with physicians and clinical teams and support the integration of registry processes in hospitals. I also contribute to improving the visibility of patients with rare diseases through communication activities and outreach initiatives.

Work experience

2024 – dato    
Project coordinator rare disease Children Hospital Zurich & Institute of Social and Preventive Medicine (ISPM), University of Bern

2023 – 2024   
Research Associate Open Science, Bern University of Applied Sciences

2022                  
Founder of Health Science Complete GmbH, Bern
Research Associate Oncology, Sunnybrook Research Institute Toronto

2021    
Research Assistant, Corona Immunitas Lucerne

2013 – 2020    
Nurse in various institutions (Inselspital Bern, Psychiatry Bern/Basel, Tilia Foundation)

Volunteer

2024 – dato     Board Member and Health Science Advisor, restful - Digital Peer to Peer Platform in the public health sector, Bern

Education

2023                   
Project Management Course, VZPM

2020 – 2022     
MSc Health Sciences, University of Lucerne

2021                    
Good Clinical Practice Investigator and Sponsor-Investigator Level

2017 – 2020     
BSc in Science of Nursing, Bern University of Applied Sciences

2010 – 2013     
«Fachfrau Gesundheit» EFZ, Solothurner Spitäler AG